The
Pioneer Portfolio of the
Robert Wood Johnson Foundation has introduced a research and policy overview of personal health records (PHRs) and related issues. The feature traces the history and development of PHRs and discusses their role within the larger health information technology arena. It also highlights a shift in emphasis from data captured in clinical encounters to patient-generated “observations of daily living,” which show strong potential to provide a fuller picture of people’s health and help them more actively manage their care—together with their providers—day in and day out.
PHRs have evolved significantly over the past decade and there are some exciting pockets of innovation that are extending their utility and impact. This feature contextualizes those developments, and looks to the challenges that lie ahead for PHRs—such as incentivizing widespread adoption, demonstrating sustainable business models, and striking the right balance between privacy and openness in an information age.
This feature represents a synthesis of perspectives, insights, and lessons learned by the Pioneer Portfolio and its grantees after five years of program work in this space.
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