By Karen Cheng, Charles Drew University, FitBaby Principal Investigator.
Read all of the FitBaby blog posts.
To watch a parent care for a high-risk infant is like watching someone do the impossible: frequent feedings with special formulas and/or g-tubes, administering a slew of medications, endless doctor’s appointments. All this while trying to care for other kids, and if time permits, maintain one’s personal relationships and health.
For many parents of high-risk infants, these tasks can get in the way of bonding with the infants.
The families come out [of the Neonatal Intensive Care Unit] and they don’t have a normal relationship with their baby.... They’re struggling with having a child who is ultra-fragile…. so they don’t normalize their life…. this child is treated one way and other children are treated a different way…
- Clinician 1 from Early Developmental Assessment Center

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