Project HealthDesign National Program Office
We are in the final six-month stretch of Project HealthDesign, and we’re trying to share some of our project’s most relevant and dynamic findings with respect to patient-generated data. We learned through our recent grantees’ research that familiar consumer electronic devices, like cell phones and tablets, can help patients capture observations of daily living and personal insights, and allow them to easily share these data with their clinicians.
There’s another type of patient-generated data out there. We’ve learned from conversations with people whose health lives depend on implantable devices like cardiac defibrillators and insulin pumps, that data derived from these devices provide important information not only about how the device is performing but also about the patient’s health state. It is timely to figure out how to make data acquired through such implantable devices accessible and useful to patients as well as clinicians and researchers.
In this video, Patricia Flatley Brennan offers some compelling thoughts about the need to imagine and harness this novel patient-device data to make sure it serves the ultimate health interest of patients. Device makers and federal bodies who regulate these devices should pay particular attention. While watching this video, keep these questions in mind: How can we ensure that patient-device data are 1) understandable to and accessible by both patients and clinicians; 2) completely secure from disruption and tampering, and 3) regulated carefully and fittingly?
Project HealthDesign wants your input on this important matter. If you have thoughts, suggestions, ideas about all types of patient-generated data, post your comments below or send them to [email protected]