Project Health Design Blog

PHR-Related Events in May

Posted May 1, 2008 by Lygeia Ricciard

While there are many conferences and events that cover some aspect of the overlap between health and information technology, I wanted to draw your attention to a few coming up in the near future that highlight PHRs specifically.

May 6, 2008 – World Congress Leadership Summit on Consumer Connectivity & Web Empowerment
As part of this one-day leadership conference, Lygeia Ricciardi (Project HealthDesign’s blogger) and Vince Kuraitis (Better Health Technologies and the e-CareManagement blog) are on a panel on “Determining the Value and Future Direction of Employer Initiatives Seeking to Establish Employee PHRs” addressing the emerging personal health information network, privacy concerns, and the implications for employer-sponsored PHRs. (Boston, MA)

May 8, 2008 – National Web Conference on Practical Solutions for Engaging Consumers in the Design and Use of PHRs: Beyond User Centered Design
In this third of a three-part web series sponsored by the AHRQ National Resource Center for Health IT, Patty Brennan (Project HealthDesign’s National Program Director) and Kathy Hajopoulos, (University of California, San Francisco Medical Center), will characterize the people, living at home, who use familiar (e.g. paper calendars) and electronic tools to accomplish health management tasks. They will then illustrate user-centered design activities employed by Project HealthDesign, including one team's approach to give women with cancer the tools to create a life-sustaining balance of family life and medical treatment. To register, click on "Enroll". (Online, 1:30 to 3:00 PM Eastern)

May 15, 2008 – TIGER Consumer Empowerment/PHR Collaborative Meeting
The Technology Informatics Guiding Education Reform (TIGER) Initiative is focused on helping the nursing profession to adopt informatics tools, principles, theories and practices that make healthcare safer and more effective, efficient, patient-centered and equitable for all stakeholders. Register for their web-based meeting here.

May 15, 2008 -- HHS Public Consumer Empowerment Workgroup Meeting
This is a meeting of one of the workgroups of the American Health Information Community (the Community), run out of the Department of Health. It is made open to the public via webcast—you can ask questions at the end. (Online)

May 17-21, 2008 – TEPR (Towards the Electronic Patient Record)
The TEPR 2008 Annual Conference program, sponsored by the Medical Records Institute, addresses several major interests including consumer/patient IT systems. http://www.medrecinst.com/tepr/index2.html (Fort Lauderdale, FL)

May 21, 2008 – Moving Toward an E-Enabled Healthcare Environment: Telehealth, EMR, PHR, eRX, and Related Technology Tools from 30,000 Feet - Update and Status
This is an educational panel organized by the 2008 Capitol Hill Steering Committee on Telehealth and Healthare Informatics, which has convened more than 100 widely attended, publicly available educational lunch sessions and technology demonstrations on Capitol Hill. Events are free of charge but require registration with the organizer, Neal Neuberger at nealn@hlthtech.com. (Washington, DC)

May 29 through 31 – AMIA Spring Congress
This meeting of the American Medical Informatics Association (AMIA) is designed to showcase the best of biomedical and health research and education by focusing on four topical tracks, one of which is PHRs. Ken Goodman (Project HealthDesign’s ethics advisor) will discuss “Key Ethical and Social Issues in a Future of Widespread PHR Adoption.” (Phoenix, AZ)

PHR-Related Events in April--Updated

Updated April 10, 2008 by Lygeia Ricciardi

While there are many conferences and events that cover some aspect of the overlap between health and information technology, I wanted to draw your attention to a few coming up this month that are particularly relevant to PHRs:

April 3, 2008 – Personal Health Records: Personal Control of Health Data and Patient Provider Communications.
This is the 2nd in a 3-part Series of web conferences on Personal Health Records sponsored by the Agency for Healthcare Research and Quality. (Online)

April 11-13, 2008 – Consumer Health Informatics: An Intensive Learning Experience
The purpose of this two and one-half day course is to increase the knowledge of clinicians on the needs of the consumer for using e-health systems to provide benefits throughout society. It will offer an in-depth look at the latest research, systems, and practice in Consumer Health Informatics. (Claremont, California)

April 15, 2008 -- HHS Public Consumer Empowerment Workgroup Meeting
This is a meeting of one of the workgroups of the American Health Information Community (the Community), run out of the Department of Health. It is made open to the public via webcast—you can ask questions at the end. (Online)

April 17, 2008 -- Healthcare Informatics Webinar: Google, Microsoft, & Dossia Create the Personal Information Network
In this webinar, experts Vince Kuraitis and David Kibbe discuss their vision of the Personal Health Information Network. 1:00PM Eastern, 10:00AM Pacific. (Online)

April 23/24, 2008 -- HIMSS Virtual Conference & Expo
The is not a Web Seminar; it is a fully interactive event that incorporates online learning, live chat, active movement in and out of exhibit booths and sessions, vendor presentations, contests and more. The conference is 100 percent virtual. Speakers include Jonathan Bush (athenahealth) and Matthew Holt (The Healthcare Blog). (Online)

April 24, 2008 – Innovations in Healthcare Delivery
The Federal Trade Commission will host a one-day public workshop to examine recent trends in health care delivery. In a series of panel discussions, workshop participants will consider the competition and consumer protection issues regarding particular health care delivery innovations. (Washington, DC)

PHR-Related Events in March

Posted March 3, 2008 by Lygeia Ricciardi

While there are many conferences and events that cover some aspect of the overlap between health and information technology, I wanted to draw your attention to a few coming up this month that highlight PHRs specifically:

March 3-4, 2008 -- Health2.0 Spring Fling “Connecting Consumers & Providers”
A spinoff of the broader Health 2.0 Conference in the fall, this meeting is focusing on consumers & providers using Health 2.0 tools and technologies.
(San Diego, CA)

March 5, 2008 -- National Web Conference on Personal Health Records: An Overview
This is the 1st in a 3-part Series of web conferences on Personal Health Records sponsored by the Agency for Healthcare Research and Quality. (Online)

March 18, 2008, 1:00 p.m. to 4:00 p.m. -- HHS Public Consumer Empowerment Workgroup Meeting This is a meeting of one of the workgroups of the American Health Information Community (the Community), run out of the Department of Health. It is made open to the public via webcast—you can ask questions at the end. (Online)

March 28-30, 2008 -- Patient-Centered Computing and eHealth: Transforming Healthcare Quality
Project HealthDesign's National Program Director, Patricia Flatley Brennan, RN, PhD, will be a keynote speaker at a CME course presented under the auspices of Harvard Medical School's Division of Continuing Education. (Boston, MA)

Consumer Health Informatics Course in CA in April

Posted February 11, 2008 by Lygeia Ricciardi

FYI -- Claremont Graduate University is offering a 2.5 day educational workshop on research, systems, and practice in Consumer Health Informatics starting April 11, 2008. A description from the course website is as follows: This course provides dialogue between you and those most respected in the field of Consumer Health Informatics. Through presentations, panel discussions, and case study analyses participants will explore:

* PHR uses across diverse communities
* Consumer options for PHRs
* The role of consumer informatics in practice
* PHRs in times of emergency
* Educating the consumer on HIT
* The effect of policy on consumer adoption of HIT
* Consumer use of HIT

This two and a half day intensive learning session will serve to educate professionals on the gaps and needs of the consumer as a springboard for considering and enacting exciting new ideas for using e-health systems to provide benefits throughout society. This course will also provide an opportunity for educators to share their interests and experiences in providing a consumer health informatics perspective in the classroom.

Instructors and Guest Faculty include:
** Thomas A. Horan, PhD; Claremont Graduate University

** Karen Bell, MD; Office of the National Coordinator for Health Information Technology
** Blackford Middleton, MD, MPH, MSc; Center for Information Technology Leadership (CITL)

** Susan Daniels, PhD, Former Deputy Commissioner for Disability and Income Security Programs, Washington, DC
** Bill Hersh, MD, Oregon Health & Science University
** Don Detmer, MD, Professor of Medical Education at the University of Virginia, President AMIA
** Ted Shortliffe, MD, PhD, University of Arizona
** Holly Jimison, PhD, Oregon Health & Science University
** Paul Torrens, MD, UCLA
** Robert Jenders, MD, Cedars-Sinai Medical Center, UCLA
** Kim Nazi, Veterans Administration
** Will Crawford, Boston Children’s Hospital

For more information and to register see: http://kaycentersymposium.cgu.edu

Nurses’ Workgroup on Consumer Empowerment/PHRs

Posted February 6, 2008 by Lygeia Ricciardi

FYI -- The Technology Informatics Guiding Education Reform (TIGER) Initiative is focused on helping the nursing profession to adopt informatics tools, principles, theories and practices that make healthcare safer and more effective, efficient, patient-centered and equitable for all stakeholders.

At the TIGER Summit in 2006, participants defined action steps that the nursing profession can take to better prepare its workforce to use technology and informatics to improve the delivery of patient care.  Nine workgroups grew out of that effort – one on Consumer Empowerment and PHRs. The Consumer Empowerment and PHRs workgroup has set up a wiki and will be holding a webinar on February 21^st. The group is still fairly early in defining its work. You can sign up to participate here.

Health 2.0 Conference Recap

I wanted to draw your attention to Emily Culbertson's thoughtful recap, on the Pioneering Ideas Blog, of the recent Health 2.0 User Generated Healthcare conference in San Francisco. How will interactive Web 2.0 tools change the "hairball" that is the healthcare system? Emily's post (in addition to some other blogs she links to) explores the answer.