Libby Dowdall, Communications Coordinator, Project HealthDesign National Program Office
If you’ve been reading the Project HealthDesign Blog for a while, then you know we have a lot to say about patients (e.g., patient engagement, patient-centered health care, patient-clinician communication, patient activation, etc.). In fact, we believe patients are the experts in their own day-to-day health experiences. That’s why our five current grantee teams are working with real patients — more than 135 of them, in fact — who live with a variety of chronic diseases. Each of the five projects has taken a distinct approach to allow patients to capture and review data about their observations of daily living, symptoms and/or activities of daily living outside of clinical visits. To this end, each group has developed a unique technical arrangement in hopes that the resulting data and summary reports will help provide the participants themselves, as well as their clinicians and caregivers, a richer picture of the patient’s day-to-day health.
Be sure to follow along this week and next as we dive into the topic of patient engagement. You’ll hear from two inspiring members of our National Advisory Committee, as well as one of our current grantee teams, on a variety of topics related to patient engagement and participatory medicine. Stay tuned. You won’t want to miss this series!